Family Updates
News, milestones, medical updates and real-life moments, big and small.
Follow along →You are not alone in this journey
We’re a family of 8, sharing our story of caregiving, grief, mental health, rare disease and pediatric hospice, with honesty, hope and a whole lot of love.
Read Our Story
Rare Disease Awareness
Raising awareness and sharing resources for families affected by rare disease.
Learn more →Grief & Mental Health
Honest conversations about grief, mental health and the messy work of moving forward.
Learn more →Caregiving Support
Encouragement for the caregiving journey, especially when the days feel heavy.
Learn more →Real people. Hard days. Hope always.
There’s room for all of it here.
The laughter, the hard days, the questions, and the love that carries us. We share our family’s journey so other families facing grief, caregiving, medical complexity or mental health struggles can feel a little less alone.
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